In this latest guest blog, Dayna Halliwell, junior strategist at Purple Goat, disabled and neurodivergent content creator and Sunflower Friend, shares her thoughts on the barriers when navigating the disability benefits system in the UK.

Navigating the Personal Independence Payment (PIP) process can be a challenging journey, even though my personal experience was relatively smooth compared to others. Government-backed schemes often have an air of complexity that can leave applicants feeling bewildered. In this article, I'm here to lend a helping hand, sharing quick-fire tips based on my own experiences to guide you through this intricate process. Together, we'll embark on a journey to demystify PIP and empower you with valuable insights. So, without further ado, let's dive in!

So what is PIP, and who is eligible?

Personal Independence Payment, or PIP, is a non-means-tested benefit available in the UK, designed to provide crucial financial support to individuals grappling with medical conditions and disabilities. The UK government acknowledged that disability-related expenses can average an extra £500 per month for households, and thus introduced PIP to address this financial challenge. Unfortunately, the practical application of PIP often faces issues of discrimination and bias, leading many disabled individuals to appeal before finally receiving the benefit.

But as someone who does receive PIP, I can attest to its transformative power in accommodating the needs of disabled individuals. It has profoundly improved my quality of life, which is why I'm sharing this article to support you in your journey to secure it too.

The PIP application process:

Now, let's delve into the heart of the matter—the PIP application process.

Initial Contact

First, you need to make that initial call to the Department for Work and Pensions. It's a simple step that sets the wheels in motion. After this contact, they'll send you a 'How your disability affects you' form.

The 'How your disability affects you' form

This form is a critical part of your PIP application. It requests detailed information about how your disability or health condition affects your daily life. Be thorough and honest when filling it out. If you're unsure about any part, consider seeking assistance from someone who can help you accurately describe your circumstances.


Regardless of whether you submit the form or not, the Department for Work and Pensions will still arrange an assessment for you. This assessment is conducted by a third-party agency specialising in evaluating disability claims. They'll ask questions and assess your physical and mental abilities.

And here's a key point: you don't always need an official diagnosis to qualify for PIP. The DWP acknowledges that some individuals may fall into a diagnostic gap. For instance, I haven't received a formal diagnosis of Lupus yet. However, my GP played a vital role in supporting my PIP application by providing a letter explaining my medical history and the likelihood of a formal diagnosis.

Understanding PIP Assessment: A Points-Based System

The PIP assessment process uses a points-based system to evaluate your eligibility in two key areas: living allowance and Motability. These criteria are designed to assess how your disability or health condition impacts your daily life. Understanding this system is a crucial component of your PIP application.

Living Allowance

This component, also known as the daily living component, evaluates your ability to manage everyday tasks and activities due to your condition. You need to accumulate a specific number of points for eligibility. Points are awarded based on various activities like preparing meals, managing medication, dressing and undressing, bathing, and handling finances.


This component assesses your ability to move around and stay connected with the world. It's vital for individuals who rely on mobility aids or require extra support for transportation. Similar to the living allowance, the Mobility component also uses a points-based system to evaluate your eligibility, considering activities like planning journeys, moving around, and engaging with others.

The points you accumulate in each area determine the level of support you receive. Being well-informed about the points system and the specific activities assessed in both living allowance and Motability can help you provide accurate information and strengthen your PIP application.

Supporting Yourself Through the PIP Process

It's no secret that the assessment process, and the PIP journey in general, can be incredibly stressful and emotionally turbulent. However, there are several things you can do to support yourself throughout this challenging journey:

Stay organised

 Keep all your documents in one dedicated folder or file, including letters, medical records, and assessment dates. If you find this task daunting, don't hesitate to enlist the help of a loved one or a friend who can assist you in staying organised.

Seek Support

You don't have to go through this alone. Reach out to your friends, family, or support groups dedicated to individuals navigating the PIP process. Sharing your experiences and concerns with others who understand can provide emotional support that's invaluable during this journey.

Stay Informed

Knowledge is power. Take the time to educate yourself about your rights and entitlements in the PIP application process. Understanding what you're entitled to and what to expect can give you a sense of control in a situation that often feels out of your hands.


Amid the stress, it's essential to prioritise self-care. Dedicate time to activities that help you relax and de-stress. This could involve practising mindfulness exercises, engaging in hobbies you enjoy, or simply spending time in nature. Taking care of your mental and emotional well-being is as important as any other aspect of this process.

The Waiting Game and the Appeal Process

After the assessment, it's a waiting game. The DWP may ask for additional evidence, but you can cross that bridge when you come to it. Ideally, your PIP application sails through smoothly, and you receive the support you need without any bumps.

However, it's no secret that more eligible claims get rejected initially and are only approved after an appeal. The appeal process can be daunting, but it's an essential step if you genuinely believe in your case. Seek advice from organisations that specialise in helping people with disabilities through the appeal process, be persistent, and remember that you have the right to advocate for yourself.

In the face of a potential appeal, keep your determination intact and seek the support you need to ensure you receive the financial assistance that can significantly improve your quality of life. Your journey through the PIP process may have its challenges, but with the right approach, you can achieve a positive outcome. Remember, you're not alone, and there's a supportive community out there to help you through this journey.


Your journey through the PIP process is unique, but you're not alone. As you navigate the steps, remember to stay organized, seek support, stay informed about your rights, and prioritize self-care. These elements can make the process more manageable and empower you to present your case effectively.

However, should you encounter hurdles along the way, don't be discouraged. The PIP system sometimes requires persistence, and appeals are not uncommon. Should you find yourself in this situation, remember that you have the right to advocate for yourself, and there are organisations and experts ready to lend a helping hand.

Additional Resources

In addition to the information shared in this article, it's essential to explore other resources that can further aid you on your PIP journey. One such resource is the "Motability Scheme." This invaluable initiative provides disabled people access to a wide range of specially adapted vehicles, wheelchairs, scooters, and other mobility solutions.

The Motability Scheme is a lifeline for those who rely on mobility aids or require accessible transportation to maintain their independence. It can significantly enhance your ability to stay connected with the world, improve your quality of life, and provide a sense of freedom.

By combining the support of the PIP benefit with the services offered by the Motability Scheme, you can create a comprehensive solution that meets your specific needs and empowers you to live life to the fullest.