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The Sunflower Conversations

The Sunflower Conversations are where we explore the experiences of people living with non-visible disabilities and their families, friends and carers, through the prism of their relationship with the Sunflower.

In a world where it can be hard to feel like your story matters, we want to give you a space to share your experience. Whether you or someone you care about wears the Sunflower, we hope that by giving voice to these experiences, we can empower others and encourage more people to support people with invisible disabilities. If you want to share your experience, get in touch with us by emailing us here

 
 
Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter

Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter

  "I was first hospitalised at six months old. And they discovered that I did have chronic intestinal pseudo-obstruction, likely known as CIPO. This is where the intestinal muscles don't fully relax and move things through the digestive...
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  1. Early Onset Alzheimer’s with Jay Reinstein, VOA Foundation
  2. Autism and aspergers with Alex Manners
  3. Multiple Sclerosis diagnosis to charity building Talks With MS
  4. Palindromic Rheumatism, Comorbidities and Neurodivergence with Danielle Cudjoe Michalksi
  5. Functional Neurological Disorder, FND, with Simone Round
  6. Type 2 Diabetes with Ashwin Soni
  7. Mental Health with Kelly Winstanley, Mental Heath Matters
  8. Living with an Ostomy, Nate Hadlock and Keely Cat-Wells, UOAA
  9. Hearing Loss with Lidia Best, EFHOH
  10. Dementia with Tim Wilkins, Alzheimer's Society and Paul Hoskins
  11. ME / CFS with Hollie Christian Brookes
  12. Chronic illness with with Tasha Sorhaindo, Chronically Marvellous
  13. PIP with Murray Goulder
  14. Advocating for the Sunflower with Andrea Cartensen
  15. Ankylosing Spondylitis with Sean Ewert and Manny Caro, Spondylitis Association of America
  16. Multiple Sclerosis with Terri Louise Brown, Talks With MS
  17. Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter
  18. Autoimmune Diseases with Kate Middleton, The Wren Project - Podcasthon episode
  19. The Empowerment Awards and Multiple Sclerosis with Elisha Samuels
  20. Epidermolysis Bullosa with Karen Thackray, DEBRA UK and Lisa Irvine
  21. Lymphedema with Anna Maisetti
  22. Leprosy with The Leprosy Mission
  23. The LEGO Group collaboration with Lauren von Stackelberg
  24. Airport Travel with Michael Connolly, Skywise Solutions
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