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The Sunflower Conversations

The Sunflower Conversations are where we explore the experiences of people living with non-visible disabilities and their families, friends and carers, through the prism of their relationship with the Sunflower.

In a world where it can be hard to feel like your story matters, we want to give you a space to share your experience. Whether you or someone you care about wears the Sunflower, we hope that by giving voice to these experiences, we can empower others and encourage more people to support people with invisible disabilities. If you want to share your experience, get in touch with us by emailing us here

 
 
Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter

Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter

  "I was first hospitalised at six months old. And they discovered that I did have chronic intestinal pseudo-obstruction, likely known as CIPO. This is where the intestinal muscles don't fully relax and move things through the digestive...
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  1. Palindromic Rheumatism, Comorbidities and Neurodivergence with Danielle Cudjoe Michalksi
  2. Functional Neurological Disorder, FND, with Simone Round
  3. Type 2 Diabetes with Ashwin Soni
  4. Mental Health with Kelly Winstanley, Mental Heath Matters
  5. Living with an Ostomy, Nate Hadlock and Keely Cat-Wells, UOAA
  6. Hearing Loss with Lidia Best, EFHOH
  7. Dementia with Tim Wilkins, Alzheimer's Society and Paul Hoskins
  8. ME / CFS with Hollie Christian Brookes
  9. Chronic illness with with Tasha Sorhaindo, Chronically Marvellous
  10. PIP with Murray Goulder
  11. Advocating for the Sunflower with Andrea Cartensen
  12. Ankylosing Spondylitis with Sean Ewert and Manny Caro, Spondylitis Association of America
  13. Multiple Sclerosis with Terri Louise Brown, Talks With MS
  14. Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter
  15. Autoimmune Diseases with Kate Middleton, The Wren Project - Podcasthon episode
  16. The Empowerment Awards and Multiple Sclerosis with Elisha Samuels
  17. Epidermolysis Bullosa with Karen Thackray, DEBRA UK and Lisa Irvine
  18. Lymphedema with Anna Maisetti
  19. Leprosy with The Leprosy Mission
  20. The LEGO Group collaboration with Lauren von Stackelberg
  21. Airport Travel with Michael Connolly, Skywise Solutions
  22. Cerebral Palsy and Mental Health  with Eva Abley
  23. Functional Neurological Disorder and Fibromyalgia with Gabrielle Hine
  24. Cerebral Palsy with Richard Luke, Scope and Karen Watson, Cerebral Palsy Adult Services UK
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