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The Sunflower Conversations

The Sunflower Conversations are where we explore the experiences of people living with non-visible disabilities and their families, friends and carers, through the prism of their relationship with the Sunflower.

In a world where it can be hard to feel like your story matters, we want to give you a space to share your experience. Whether you or someone you care about wears the Sunflower, we hope that by giving voice to these experiences, we can empower others and encourage more people to support people with invisible disabilities. If you want to share your experience, get in touch with us by emailing us here

 
 
Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter

Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter

  "I was first hospitalised at six months old. And they discovered that I did have chronic intestinal pseudo-obstruction, likely known as CIPO. This is where the intestinal muscles don't fully relax and move things through the digestive...
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  1. Type 2 Diabetes with Ashwin Soni
  2. Living with an Ostomy, Nate Hadlock and Keely Cat-Wells, UOAA
  3. Hearing Loss with Lidia Best, EFHOH
  4. Dementia with Tim Wilkins, Alzheimer's Society and Paul Hoskins
  5. ME / CFS with Hollie Christian Brookes
  6. Chronic illness with with Tasha Sorhaindo, Chronically Marvellous
  7. PIP with Murray Goulder
  8. Advocating for the Sunflower with Andrea Cartensen
  9. Ankylosing Spondylitis with Sean Ewert and Manny Caro, Spondylitis Association of America
  10. Short Bowel Syndrome, feeding tubes, and ostomy bags with Shaylee Raye Hunter
  11. Epidermolysis Bullosa with Karen Thackray, DEBRA UK and Lisa Irvine
  12. Lymphedema with Anna Maisetti
  13. Leprosy with The Leprosy Mission
  14. Cerebral Palsy with Richard Luke, Scope and Karen Watson, Cerebral Palsy Adult Services UK
  15. Cushing's Syndrome with Gretchen Jordan
  16. PTSD and CPTSD with Rachel Bilksi, PTSD UK
  17. Inflammatory Bowel Disease (IBD) with Amy Kelly, Crohn's & Colitis Ireland
  18. Governors for Schools podcast - Representing every child
  19. PMDD with Anna Cooper and Dr Rebecca Tomlinson, Menstrual Health Project
  20. ADHD and Autism with Althea - Australia and New Zealand
  21. PMDD with Amani Omejer
  22. Parkinson's with Eve Jensch
  23. Austim and ADHD Clare and Matilda Kemp
  24. Optic Nerve Glioma with Karina Smith and Michelle Culbert
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