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Mik Lenth and Ehlers Danlos Syndrome (EDS)

By Hidden Disabilities Sunflower The Sunflower Conversations Share

Disability isn’t tragic

Mik Lenth is 19 and lives in the MidWest in the US and has Ehlers Danlos Syndrome (EDS) which affects her connective tissue. The type that Mik has is hypermobility which means that her joints come out of place and dislocate.

Mik talks us through her condition and how it has affected her growing up, particularly at school and how it continued into employment. The symptoms have progressively got worse and has led to several operations on her jaw and knee.

With a good support system Mik doesn’t let her chronic illness hold her back and is looking forward to studying in Madrid this year and advocating for invisible disabilities. If you are experiencing problems discussed in this podcast contact your GP.

Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower.

Want to share your story? email: [email protected]

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