Learn how non-specific symptoms like weight gain, high blood pressure, and emotional instability complicate the diagnosis of Cushing's disease. Gretchen's heartfelt narrative highlights the significant lifestyle changes necessary to manage the disease, the challenges of delayed diagnoses, and the emotional toll it takes. We discuss the importance of recognising these symptoms early to improve quality of life and reduce the risk of severe complications.
Explore the treatment journey for Cushing's disease, including the significance of cortisol testing and the path to recovery post-surgery. The episode sheds light on the support systems essential during this journey, particularly during the challenging recovery phase. We also discuss the broader significance of raising awareness for rare diseases and initiatives like the Hidden Disabilities Sunflower program. Tune in to gain valuable insights and become a part of the awareness movement for rare health conditions.
If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.
For support
- Cushing's Support and Research Foundation
- World Alliance of Pituitary Organisations
- The Pituitary Foundation UK
Download the full transcript here.
Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower.
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